helenbielbyMar 14, 20231 min readOur daughter; our baby🌟Throwback Thursday 🌟 Throwback to those tender first few days, when you were our little baby, in a bubble ❤️. You were not yet words...
helenbielbyMar 14, 20231 min readCelebrating sibling love and advocacy for Down SyndromeHappy International Women's Day! 🥳💪 I couldn't let today pass without mentioning a young woman who advocates fiercely for her little...
helenbielbyFeb 28, 20231 min readBouncing back after blood testsNot quite a Throwback Thursday, but this little one was very brave and had another round of blood tests today. She has them annually or...
helenbielbyFeb 28, 20231 min readPancake Day 🥞 😋Hermione wasn't really interested in pancakes last year. She could take them or leave them. Hermione can be quite particular with her...
helenbielbyFeb 28, 20231 min readMakaton storytime fun!'We're going on a bear hunt, we're going to catch a big one!' 🐻🌿🥰 Today we had a lovely time at a very special Makaton signed story...
helenbielbyFeb 14, 20232 min readFriendship: a beautiful key unlocking new experiencesThis weekend, the party journey continued 🥳. Hermione has been quite the social animal 🥳😂. But I know you'll know from previous posts,...
helenbielbyFeb 14, 20232 min readWakefulness and Sleepiness: it's all in a night's workLike a spluttering car, we made it to the end of half term 😆. Hermione is so tired, it has affected her behaviour at home this last...
helenbielbyFeb 14, 20231 min readMarkers of time for my little girl with Down SyndromeSuddenly stopping 😴. That's been our theme recently 😌. Whether that be for illness, sleepiness or when she's walking down the path to...
helenbielbyJan 17, 20232 min readPositivity to finish the week!We ended the week on a positive note! 🥳 Hermione returned to school on Wednesday, supported by the antibiotics, and it was clear she was...
helenbielbyJan 17, 20231 min readKeep on keeping on: writing about the good and the bad daysThank you for all the lovely and supportive messages for Hermione and for us 💕. Hermione is improving with the antibiotics and we're...
helenbielbyJan 4, 20231 min readAnd so the appointments begin...A new year and new appointments begin! 🙈📱. No rest for the wicked eh?! 😂 Today we visited the nurse practitioner who works alongside...
helenbielbyJan 4, 20231 min readHappy New Year in Makaton!We've been super happy and proud with how Hermione's speech and signing is developing: here's a little video with Makaton signing for...
helenbielbyDec 27, 20222 min readFirst full term in reception: complete!And just like that... Her first full term in reception class is done! ✅🥰 I'm forever grateful to the teachers and teaching assistants...