helenbielbyFeb 14, 20232 min readWakefulness and Sleepiness: it's all in a night's workLike a spluttering car, we made it to the end of half term 😆. Hermione is so tired, it has affected her behaviour at home this last...
helenbielbyFeb 14, 20231 min readMarkers of time for my little girl with Down SyndromeSuddenly stopping 😴. That's been our theme recently 😌. Whether that be for illness, sleepiness or when she's walking down the path to...
helenbielbyJan 25, 20232 min readClimbing the perpetual mountain of paperwork for my little girl with disabilitiesHermione Volume 1 🤩. That's the title I gave to the first folder full of paperwork we've gathered since Hermione was born. Appointment...
helenbielbyJan 22, 20231 min readSensory issues: you do what you've gotta do!Hair. Hermione was blessed with beautiful long, golden hair (definitely got her dad's quick-growing hair genes and not mine 😂) and it's...
helenbielbyJan 19, 20232 min readThrowback Thursday: The 20 week scan🌟 Throwback Thursday 🌟 At 20 weeks pregnant with Hermione, we spent all day going back and forth to the hospital for scans. I was...
helenbielbyJan 17, 20232 min readPositivity to finish the week!We ended the week on a positive note! 🥳 Hermione returned to school on Wednesday, supported by the antibiotics, and it was clear she was...
helenbielbyJan 4, 20231 min readHappy New Year in Makaton!We've been super happy and proud with how Hermione's speech and signing is developing: here's a little video with Makaton signing for...
helenbielbyJan 4, 20232 min readSibling bonds and the story I'm looking forward to reading in 2023Inspirational stories I'm excited to read abut in 2023 💖🤩. We visited Leeds yesterday, with our eldest daughter, Rose, whilst Hermione...
helenbielbyJan 4, 20232 min readRemembering compassion for myself as a parent carer in 2023A new year is again round the corner, and the reflections begin. Most of my reflections do relate to my kids, and whether I've done...
helenbielbyJan 4, 20231 min readOur Christmas 2022Mirabel cuddles and a Happy Christmas to all! 💕 🎄🎅 Xxx We managed to have a snot-free Christmas day - yay! 🥳 Have we managed a...
helenbielbyDec 27, 20222 min readFirst full term in reception: complete!And just like that... Her first full term in reception class is done! ✅🥰 I'm forever grateful to the teachers and teaching assistants...
helenbielbyDec 16, 20221 min readHermione's first NativityOur Angel baby 😇💕. I often talk about Hermione feeling like our little miracle baby now. After losing two babies this past year, it's...
helenbielbyDec 14, 20222 min readHermione: making the ordinary extraordinaryYou can't be a shrinking violet when you're out and about with Hermione 😆 xx We went for a little wander and shopped for a few things at...
helenbielbyDec 1, 20223 min readOpening up the conversation about the lived experience of Down Syndrome with student doctorsWe met and chatted to seven different student doctors during our hospital stay. The two consultants who asked if it would be okay for us...
helenbielbyNov 24, 20222 min readSnot, sleep and Mirabel: the many features of our life with Hermione!Current situ... Sharing the big bed with Hermione, as we have another snotty few days ahead 🤧. When Hermione gets congestion, you know...
helenbielbyNov 21, 20222 min readRaising our daughter with Down Syndrome and the untold joy she brings"A joy to have in the classroom!" ðŸ˜ðŸ¥° Imagine if those were the words you could see being said to you in a crystal ball when you were...
helenbielbyNov 6, 20222 min readHoping that the world will always hold you in its arms like I doYour life away from me. When you were a baby, I couldn't imagine not having you by my side. We did everything together: baby groups,...
