helenbielbyJan 29, 20232 minQuiet days and downing toolsA quiet few days have been had again 😴. Poor Hermione. What a Winter we've had so far with poorlyness. I used to really struggle with...
helenbielbyJan 25, 20232 minClimbing the perpetual mountain of paperwork for my little girl with disabilitiesHermione Volume 1 🤩. That's the title I gave to the first folder full of paperwork we've gathered since Hermione was born. Appointment...
helenbielbyJan 17, 20232 minPositivity to finish the week!We ended the week on a positive note! 🥳 Hermione returned to school on Wednesday, supported by the antibiotics, and it was clear she was...
helenbielbyJan 17, 20231 minKeep on keeping on: writing about the good and the bad daysThank you for all the lovely and supportive messages for Hermione and for us 💕. Hermione is improving with the antibiotics and we're...
helenbielbyJan 4, 20231 minAnd so the appointments begin...A new year and new appointments begin! 🙈📱. No rest for the wicked eh?! 😂 Today we visited the nurse practitioner who works alongside...
helenbielbyJan 4, 20231 minHappy New Year in Makaton!We've been super happy and proud with how Hermione's speech and signing is developing: here's a little video with Makaton signing for...
helenbielbyJan 4, 20232 minRemembering compassion for myself as a parent carer in 2023A new year is again round the corner, and the reflections begin. Most of my reflections do relate to my kids, and whether I've done...
helenbielbyNov 2, 20222 minCarving out my new identity as a parent carer to my daughter with Down SyndromeI've thought a lot lately about my identity as a mum and a carer. Just after we were given our prenatal prognosis of the high likelihood...