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Adjusting my expectations for Christmas as a parent of a little girl with Down Syndrome

helenbielby

This year, I've tried to tell myself it's okay if the Christmas Eve and day traditions don't quite go to plan.


Some things work for Hermione, and some things don't.


The Christmas Eve box was a thing of interest to her, and she liked to unpack the items, and then place them all back in, one at a time, and then put the lid back on. You've got to laugh 😆.


We couldn't do the reindeer food sprinkle because she wouldn't accept that we'd have to go back inside after the sprinkle, and there would be a risk she would sprint down our street in the pitch dark.


I offered her a cracker from the box yesterday, as she showed interest in them, but got frustrated and flipped them onto the floor. You've got to laugh really.


We tried putting The Snowman on today, and some different Christmas films, but if it wasn't Waffle the Wonder Dog, she got a bit mad and unhappy it wasn't her usual choice (it was a bit funny when she peeped over the sofa in her funk, and got caught by us actually watching The Snowman, and then got mad again because we caught her watching it 😆).


I'm trying to sit and be okay with the fact that I'm preoccupied with any sign of illness again, and I'm watching her sleep to see any signs of snuffling or coughs. I'm trying to not let that anxiety overtake me.


I'm also cherishing those moments where we realise she understands, not just Christmas, but everything a bit more this year.


She signs Christmas, Santa and presents.


She remembered her dance from her role as one of the Angels in her nativity, and impromptu danced with her hands above her head and twirled around in front of the tree.


She's absorbing things that perhaps one or two years ago, I had no estimate of when these things might happen.


I'm accepting that Christmas is just about doing what you need to do as a family.


We're growing and learning with Hermione and it's okay to let go of things you wish you could do, but you perhaps can't at this moment in time.


But things change all the time.


Merry Christmas from Our Gentle Hermione and thank you for all your comments/likes, shares and follows since I started the blog this year. It really means a huge amount to me, so thank you for all your support and I hope you've enjoyed reading our journey so far 😊🎄🎅❤️ xxx


(photo from last year when Hermione snaffled the last of Santa's mince pie on Christmas morning! 😂🎅😋).



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