We've been a little bit quiet on here lately, as it turns out we didn't just have a snotty few days ahead, but in fact a hospital stay 😢.
The snottiness quickly turned into a cough, then a red tongue and mouth sores, then the lethargy came, and the lack of eating and drinking.
The antibiotics were just not zapping it.
A trip to A&E revealed very low oxygen saturations for our little Hermione, so she was placed on oxygen whilst we waited for a bed.
We spent the next week beside her, waiting for her levels to improve. The doctors and nurses tried nebulisers and inhalers, and we had chest x-rays and chest physio: you name it, we tried it.
But her oxygen levels just weren't increasing whilst she was sleeping; sometimes as low as 72. And we were informed it needs to be over 90 😢.
Fast forward a few days, and she appeared to be improving during the day: showing interest in toys, drinking a little more and even eating a banana or two. Her levels are above 90 when awake.
The nights become puzzling, as her breathing begins to settle. Despite the coughing, she is not showing severe respiratory distress.
We have several conversations with several different specialists; Respiratory, Ear, Nose and Throat and various doctors, and we seriously now wonder whether a more long term condition has been uncovered.
The possibility of sleep apnea. One of the things that has scared me for a while.
We're now in the pipe line for various other investigations: sleep studies and ENT appointments.
It's horrible being in hospital for a lengthy amount of time with a little one, as I'm sure everyone would agree, but hopefully we have potentially unearthed something we might not have known about, had we not been in for a chest infection.
It was hard, distressing and really bloody tiring at times.
But safe to say, Hermione captured everyone's hearts in hospital; and I could see that her very existence was changing hearts and minds about what it means to have Down Syndrome.
So proud of our girl ❤️❤️ xx
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